Features Nov 21, 2012 at 4:00 am

Why Would Someone Want to Fake a Serious Illness on the Internet?

Paul Hoppe

Comments

102
101 hits it on the head!! Tumblr is batshit. Loads of sociopaths with self-diagnosed autism or anxiety disorders; if you call them out, their reply with be how Western medicine is "problematic" and "oppressive", thus they're entitled to diagnose themselves. They're usually "social justice warriors", railing against the evil cis White heterosexual man and thin privilege and wealthy privilege. Some even identify as "trans-ethnic" or "otherkin". (Yes, otherkin is when you identify as an animal.) The kicker is how the majority of them post PayPal "Donate" buttons to their blog because they think their pseudo-academic writings are deserving of payment. Or that their "self-care" requires not working.

A few years ago, I found my little sister's Vampire Freaks account. She was around 12-14. She had loads of online friends, enthralling them with made-up stories about her tragic life. Even having multiple cyber-boyfriends across the country; some of whom she'd secretly talk to on the phone. Granted, my sister had a difficult upbringing, but nowhere near the horror she invented online. Creating this character gave her power; she lived vicariously through it. Ultimately, people like her need actual therapy--not the Internet which further enables them.
103
I had a college friend who simply could not keep to the facts--every story became an elaborate exaggeration, even when she was telling it in front of people who were there, but her tellings were so entertaining that no one wanted to set the story straight and ruin the fun. But then she got worse. She Munchausened anorexia by eating tiny amounts in the cafeteria then eating from a stash of food hidden in her room. Her lies also became more hateful--she announced being engaged to some guy at home right after her best friend went through a painful breakup with a long term boyfriend. Oh, but the fiance used to hit her--but just a little bit, no sympathy please! By the time she graduated she had no friends left.

We all caught up years later on facebook and she tried to pull some of this cyber-drama, but we were all on to her. It didn't get very far and she rarely ever posts.
104
Plot twist: the girl who is called "Kate" in this story turned out to be a faker, as well. Still investigating the details, but the girl we knew actually did not ever have cancer, and was likely not even the girl in the photos we had of her. Sick to a whole new level that the girl behind "Kate" who I had become so close to would take part in something like this, when she was doing the same thing herself. The irony...
105
@104 - I also interacted with "Kate" when I was illness blogging on tumblr. I really want to know more about how "Kate"'s lies came about. I'm a friend of Valerie's and I helped uncover the first liar that Valerie encountered. Will you email me at althea.blue AT gmail DOT COM? (Cienna, if you moderate this, Valerie will vouch for who this is.)
106
"Alex" (Cara Goodman) is back, and on the same blogging website, no less. This isn't even the first time she's returned, but this time she at least has the decency not to use a fake identity as she lies about everything else in her life. OBVIOUSLY, contrary to what she told Cienna, she hasn't limited her internet access at all. Now she blogs about her life as a mother. She's invented a whole new personality, a new backstory, and so on. Her blog is rife with pictures of herself, of her baby, and of course... with lies. She is surrounded by an army of mommy bloggers who know exactly what she did and still defend her tooth and nail. If I had children, I would NEVER associate with someone who I knew faked cancer and AIDS and being raped and many, many more atrocities.

Here is a link with more information about "Alex's" return: http://into-constellations.tumblr.com/po…

STEER CLEAR OF THESE WOMEN. They are liars, sociopaths, and they'll pretend to be remorseful and twist facts around and tear your heartstrings out one by one until you believe that they were the victims in all of this, that it wasn't a choice, that they are blameless. Any word they say, even if it's "I'm sorry" or "I'm trying to change" or "that was in the past" (ESPECIALLY if it's those phrases, actually!), is pure BS. They will steal from you. They will steal your money, your gifts, your kindness, your trust, your energy, your health, ANYTHING they can get their rotted little hands on.

Masters of emotional manipulation and building up lies that would make you feel like a monster for questioning them, they'll suck the very life force out of you and try to destroy anything that is dear to you and would take your attention from them for even a moment. They'll one-up you in a pity contest. They'll try to make your entire life about them, helping them, listening to them, trusting them, thinking about them, crying about them, praying for them.

Question everyone. Question everything. And never trust anyone who has faked things like this, no matter how repentant they seem.

-Gabby (yes, from the article)
107
I have personal experience with this! It is terrible. I was a 'friend' for 13 years to one just as this... please, please, please stay clear of these people!!!! I read this article and it was like reliving what I've endured!! This woman actually lived with me for a time in my own home and had me duped... which for anyone who knows me knows that is easy... now that I am away from the woman and looking back on it because I'm healing from my own traumas in life.... I'm just sick. I stood up for this woman, I gave so much and have been so robbed!! PLEASE-stay away from people like this. Even if it sounds ok, please, please, don't be so trusting! This breaks my heart and breaks others hearts who are trying to help me heal from this woman who hurt me so badly! I lost so much.... I'm hunted and haunted by this woman even though she says she doesn't think of me.... she went so far as to send my hubby a facebook email threatening us if I didn't stop MY lies that she would sue us for slander & liable when I tried to start telling the world her lies.... she was supposed to be dead by now. She's duped so many....
108
People like this horrify me -- in part for a very personal reason (my daughter and I have an uncommon genetic connective-tissue disorder, and we do belong to some chronic-illness blogs specific to our condition, and I have a friendslocked personal blog.)

I've maintained the same online presence since the 90's, and I have a lot of friends (in-person and online) who have known me since then, but even so, sometimes I've worried that the number of medical mysteries, frightening symptoms, and (recently, due to my daughter's cardiac complications) financial issues are the exact same things that raise red flags about Munchausen's.

Thankfully, I can rest assured that (a) I'm telling the truth, and (b) we have enough medical records to choke a horse -- not to mention the fact that some of the symptoms are quite visible.

But, yes -- as I've gone from a relatively-carefree professional with an active social life who loves to dance, to now being a wheelchair user who doesn't leave the house much except for doctor's appointments (my spinal issues have gotten to the point that I need surgery before I can drive again) . . . online support groups have been INCREDIBLY necessary and have provided valuable medical information at times (when you have a poorly-understood disorder, you need to become your own expert), and actually enabled me to avoid a scheduled medical treatment that would have probably caused more damage, for example (don't give cortisone shots to someone with faulty collagen, because it accelerates tissue degeneration!)

I've been scammed a couple of times -- not by medical fakers, but by "friends" with life drama that eventually collapsed into a web of lies. I'm not sorry that I supported them when, to my knowledge, they needed it -- I'd rather err on the side of compassion.

Illness fakers, on the other hand, do actual damage to people who *genuinely* are suffering from that disease -- drawing help/funds/attention away from the genuinely needy/deserving, making people skeptical of online health claims so that they don't WANT to help for fear of being scammed, creating distrust of people with "invisible" illnesses that are nonetheless disabling, and -- cruelest of all -- creating situations like the pregnant widow @93, driven away from two separate support boards for grieving spouses because her circumstances were "unbelievable."

While I'd like to see these people get the help they need, it's frightening to realize just how little the psych professions know about how to genuinely "cure" both sociopathy and factitious disorders, and that -- aside from imprisonment -- there's very little to stop them from ditching their old online identities and just starting over again somewhere else.

Scary stuff -- and fantastic article, Cienna!
109
AndiPants, is it Ehlers-Danlos or Marfan's the two of you have? My younger sibling and I both have EDS, and in light of our rough family history I find some of these comments downright frightening. They're why I hardly ever discuss my childhood or my family online with those who don't already know me. I am a disability activist, a wheelchair user in my 20s who doesn't look ill much at all if I'm just sitting. That misleads people sometimes. I was beaten up by a stranger a few years ago because he saw me with the walking stick I was then using and decided I couldn't possibly need it & must be faking sick for welfare purposes. I was too scared to leave home for weeks after that - but I refuse to be kept down by anything I can fight.

Anyway, re. family & history, I'm a survivor of emotional & physical abuse, grooming & molestation (as an underage teen), bulimia (again as a teen); my father's a (now recovering) alcoholic & my mother died of lymphoma when I was a teenager. On top of all that, I've lost - on average - one friend or family member for every 3 years of my life.

I'm infertile (though also childfree). I have severe EDS, nearly a hundred full & partial joint dislocations on a daily basis and am on heavy narcotics. I also have 3 mental illnesses (not including M), 2 of which are manageable but can't be cured, & half a dozen secondary complications of EDS. My sibling has EDS, several secondary nasties, and borderline personality disorder. We both have PTSD thanks to all we've lived through.

Would *you* believe me about my life? I just don't talk about it...because too many people wouldn't.

I got caught up by a semi-faker once. Her illness wasn't what she was faking - it was a very nasty rare condition, worse and rarer even than mine, and she eventually died of cancer related to it. Her obituary is easily available in official locations online. But she went through a phase a couple of years before where she talked about her boyfriend, and that she'd become pregnant, and eventually she wrote that her baby had been stillborn. She talked about scattering the ashes of her baby son somewhere where she could someday be buried with him. A few months later she "broke up" with her "boyfriend" after the stress the "stillbirth" had put on their supposed relationship. Throughout all this she communicated with her best friend, who lived across the country & had a different email, phone number, all that. A year later she was fighting the cancer that killed her. After she died her mother emailed me, saying she knew I was a good friend to her daughter (who had been a very good friend to me, in spite of her fantasies), and asking if I knew how to contact her best friend as her number didn't appear to be on my friend's pager or anything. I mentioned something along the lines of "at least she's with [baby's name] now" in my return email and was puzzled to see "sorry, who was [name]? I didn't know she'd had a friend who died". I think Mom must have said that to another mutual friend, because that friend then contacted me and outlined all the reasons she believed our late friend had been lying about some major parts of her life - like her boyfriend and ever getting pregnant at all. The illness she had made accidental pregnancy extremely unlikely, and coupled with the information from her mom and the fact that nobody could find her vest friend and her mom didn't know anyone by the name of her daughter's long-term boyfriend...well.

I decided not to make a big deal of it, because I believed it would only cause pain to the people who had believed her, and she wasn't around to apologise or explain or anything like that, and she had otherwise been an amazing friend, so why shame her memory given the likely result? I miss her still. No matter what she lied about, she WAS a true friend to me, and since she's gone I guess it's a moot point now. But I've been more wary ever since.
110
Some internet wags also call it Munchhausen by Proxy Server.

Having been online since the early 90s, I've seen more than my fair share of it, too. It's made me far less likely to bother with support groups.
111
I disagree with calling Munchausen's By Internet an illness. It's no more of an illness by it's other names, malignant narcissism, sadism or sociopathy. If your illness means you constantly need to victimize others, you don't need treatment, you need to be put away. I have a serial internet sociopath who has done irreparable damage to my life over twelve years and will never stop. When is the law going to catch up with these perps? The lure of anonymity and no consequences is the very oxygen these sadistic, under-achieving, ego lacking monstrosities need to thrive. Of course the opposite is also frightening. Either you lose safety because of internet anonymity or you lose safety because no one can be anonymous and then all the nutbags can locate you physically. Perhaps we should legalize late term abortions for these wastes of oxygen whose only lives are to be online fucking up vulnerable others for the fun of it.
112
Very good article. A word to the wise.

However, I'd like to put in a good word for un-moderated (or just barely moderated) support groups. Yes, I have a disorder. Just one. I've never met another person with this disorder IRL. Thank heavens for the internet! I've been on an e-mail list for nearly 10 years and have participated in other support groups and am admin for one of them. People are almost always genuinely looking for information and support, or we're genuinely offering help. This is important. There are very few doctors who've heard of this disorder and we need the validation as well as good information. I've seen 2 trolls, not very persistent ones (both men, BTW; the one had done his homework and was able to fool me for a little while). We get a few rather silly people who simply get no response and usually disappear very soon.

Perhaps the trolls are attracted by the deadly and dramatic diagnoses?
113
Very good article. A word to the wise.

However, I'd like to put in a good word for un-moderated (or just barely moderated) support groups. Yes, I have a disorder. Just one. I've never met another person with this disorder IRL. Thank heavens for the internet! I've been on an e-mail list for nearly 10 years and have participated in other support groups and am admin for one of them. People are almost always genuinely looking for information and support, or we're genuinely offering help. This is important. There are very few doctors who've heard of this disorder and we need the validation as well as good information. I've seen 2 trolls, not very persistent ones (both men, BTW; the one had done his homework and was able to fool me for a little while). We get a few rather silly people who simply get no response and usually disappear very soon.

Perhaps the trolls are attracted by the deadly and dramatic diagnoses?
114
As a mom of triplets who used to keep up a website and YouTube page angusandthetriplets.com and YouTube/angusandthetriplets (they're still up), I've been the victim of people lying about being pregnant with triplets and suffering the same issues I had during my pregnancy. My heart went out to them. Then I had the women or teenage girls who stole my pictures and videos and used partial truths to start up their own blogs about "their" triplets. Now I'm dealing with people who hear I have Ehlers Danlos and suddenly they have it, too, only to find out later that they were liars. Makes me want to shrink into myself and quit sharing and it sure makes me cynical. So sad.
115
Valerie, I hope you are doing well. This article made me cry. Some people are so sick. I wish I could punch them all for you. I'm sure you're being as brave as you ever have been. I think about you often.

-Jen (wife of Chris) in NY
116
Sad to hear that you had to go through all that crap while you were already having cancer.

I don't think there's anything wrong with hating someone who lied to you like that. Yes, that girl is obviously mentally ill. But at the same time easy forgiveness will just encourage her (a failure to see the problem with lying seems to be a recurring theme here, and it doesn't help to teach these compulsive fraudsters that forgiveness can be easily acquired through moral blackmail). All the 'i was going to kill myself' talk just sounds like another round of attention-seeking.
She needs some serious therapy and should move away from her mother and live with people who are not enabling her lies.
117
@101
I feel the same way. If a story sounds 'too good to be true' you better have some evidence to back up that you actually are a CancerAidsOrphan.
I try not to think about the reactions actual victims get because of this fakery. I don't doubt that there is a very small percentage of people that really have been through a string of tragedies, but most people will be rightfully skeptical as soon as someone mentions they are a rape-victim AND a cancer-victim AND an orphan.
118
Great article!



https://hospicevalley.com
119
Hmm I think people should be open minded about this, Alex, though she did a wrong thing, it wasn't really in her control. Just like having cancer, is an illness that you don't choose to have. She's clearly dealing with enough as it is. I don't think other people have a right of hating Alex, sure Valarie and the others shes actually hurt do, but no one else.I encourage Alex to get therapy and get better, which I think every one else should do to. Good luck Alex and Valarie, hope you both get better!
120
NO NO NO NO NO NO NO NO.

Can I say NO one more time?

This is a rape story. Pathological lying is a symptom of childhood sexual abuse, and no where in this article does she actually say that she was raped. That was something that the author just jumped to, and the fact that every comment is congratulatory shows that there really isn't anything insightful or revolutionary about her "research". This is really disappointing, especially considering that the author gave so many details that this victim-turned-perpetrator-turned-victim started with being raped. Why would someone need to fake a major illness on the internet indeed?
121
Edit: "Nowhere in this article does she actually say that she lied about rape." My anxiety about this piece mixed with blinding anger (since I read it years ago) has clouded my grammar.
122
The Captain: "MOST of her stories" WTF?!!!

"she said she didn't want to talk about it"

NOT ONE BELL WENT OFF IN YOUR FUCKING HEAD?!

You missed this story completely. Please never write about social justice again.
123
I actually interviewed with the Stranger, and I pulled my own rape story from the paper because of this story's negligence.
124
"She was hesitant to even call what happened rape"

Fucking hell. Where is the blog about being a rape victim or the same candid cavalier attitude towards lying? It's not there because that's the true part of this story. Here I've always thought journalists were supposed to pick up on the truth.
125
Please do the right thing and retract this.
126
Don't talk to The Stranger.

1)retract this and issue an apology

2) Don't diagnosis people through the internet

3) Don't diagnose people at all. You aren't a fucking therapist.

4) As someone who has had cancer (skin) , been raped, and been tested for leukemia, I can say that OMG what this woman did was wrong but what you did was so much worse.

People are actually using this story in a clinical way: http://kumpulansoalun.com/read/the-lying…

Do you not understand the ramifications of your ignorance?
127
THE LYING STARTED AT AGE 4!!!!!!

Perpetrators of violence are almost always victims who justified and internalized that behavior instead of fighting back. Please be more careful the next time you deal with rape and lying.
128
Did you ever stop to ask questions? Questions that matter? It's like when you covered that stupid bikini burka story at Revolution Books. You didn't even bother to interview the people involved. I did better and more responsible work than this in high school. It's almost like you don't think your employer's reputation is even worth a basic level of protection. It seems like incompetent writers hid behind the validation that better writers give this publication.. Your articles are opinion pieces masked as news. You treat rape victims the same way you treat your other sources, with a flippant casual carelessness that is undeserving of serious social justice issues. You didn't even conduct interviews for your piece on the Revolution Books protest but asked a lot of open-ended questions that led to nothing substantial.

It's like you think that crafting a good sentence is the same as having something valuable to say. The fact that your writing gets you heard at all is terrifying.

It's almost like your writing is full of words muddled up by ignorance and apathy/laziness. And where is someone like me, someone who actually knows what they are talking about, supposed to go when this is the standard of journalism today? Your incompetence silences people. You should be in a profession that doesn't have these kinds of consequences, because you clearly do not take them seriously enough to address them in a responsible way. You are not a journalist. You are just a writer who is lost and broken. Try writing fiction or poetry instead. Ask Alex for help.

I cannot believe what I gave up for the idea of a better world only to find this horseshit on the other side.
129
The people in the comments found her name. You just outed a rape victim and called her a liar at the same time. I didn't writ this before, bc it's really not my job to tell you how to do yours, and I had other shit to do.

But, ya know, now that Ive lost my job (like 50 percent of rape victims),my health, my friends, and my future it really only seems appropriate that I should let you know to go fuck yourselves. You're basically a tabloid if you keep this kind of work up.
130
Maybe "the lying disease" isn't in the DSM bc psychologists found, ya know, better explanations for compulsive lying. Suicide and needing to be liked are also red flags for sexual abuse.

I literally had panic attacks for a month after reading this article. Just kind of laid In bed terrified and shaking wondering what the fuck this paper would do with my own rape story.
131
http://healthland.time.com/2012/11/30/mu…

Why do I even try? I ran this article (before your edits) by an award winning crime journalist who said, "It's a rape story."-

132
Look, I hope you're more responsible, but this story is horrible. I was raped, and people said I lied. I was sick for five years in undergrad before a doctor finally found out that I had a major genetic autoimmune disease, and I was called a liar by roommates who would simply refuse to help me get to a clinic when things got bad. I have been called a liar about my family history, my experiences on a basic level despite the fact that there is proof for all of this. It's pretty impossible for me to believe that the rape part of this is a lie. It's impossible for me to believe that.
133
http://www.theguardian.com/commentisfree…
134
Also, why would Muchausen's BY INTERNET be in the DSM? The method is not the disorder. It's not like saying, "Cancer by breast." Also, her lying isn't just relegated to medical issues or internet use.

It's like saying suicide by pills.

WHY DO YOU NEED EVERYTHING TO BE ABOUT THE INTERNET?! This isn't even activism on any level. It's so stupid.

The fact that LOVES your article on rape lies means that you are behind on social justice issues. You are basically telling society what it wants to hear, and, if I were you, I would be terrified to be the parrot of a society that hates rape victims.
135
I know that these haven't been the best comments, or the ones that always come out well-written. It's hard to make perfect arguments when you're this emotionally attached to a subject. I'm also not a lawyer, a writer, or an editor, so this really isn't my specialty. My specialty is child development.

What I'm saying here is that your negligence (not Tosh's) actively silences me and proves to me that ignorance, carelessness, and hatred of women is not a political affiliation. Bottom line: I'm a liberal and a rape victim, and I don't want people like you fighting for my rights. I don't want my stories told by people like you. I don't want my children to read your contributions. I don't want them to see you as someone to aspire to. I don't want them to think that having an audience is the same as being credible. I don't want them to grow up believing that confidence is accuracy or that it's appropriate to hide from their mistakes without addressing them in a courageous and HONEST way. You haven't done that. Will you? If not, how are you any better than Alex? Would you actually go to a therapist and ask the question, "Why was it so easy FOR ME to just assume that a woman lied about rape when I didn't have that evidence?" Alex is barely not a child. 19 after being in an abusive home for that long? Children are not programed to be sadistic. They are raised that way, and what kind of mother enables a young daughter to destroy her life? Your writing doesn't only lack research and insight but it also lacks empathy. I kept hoping that there were people out there who were not this dumb when I lived in conservative America. If you want to tell people that it's better on the other side, then you have to actually create a better side. Not giving a shit (about your work, your mistakes, your impact) isn't something developmentally sound adult human beings do. And not getting sources from the articles you cover is not caring. Why are you in this industry at all if you don't actually want to do the work required of this industry? It would be one thing if you JUST missed things that a psychologist or teacher could catch, but you almost go out of your way not to investigate. You consistently assume that your assumptions are good enough. Are you an expert on trauma? Development? Psychology? Rape? Disease? Cancer? Social Justice?

Your writing makes it seem like the only thing you understand is the internet.

No rape story is easy, but the ones that go to trial have the aid of lawyers, judges, police officers, and psychologists who do the really hard work for the journalists. Do the 97% not deserve to be heard?
136
I regret engaging with this. I shouldn't expect a person who writes like this to care about making reparations. I was right not to bother with it. This was a lapse of judgement on my part.
137
Ugh, turns out making up stories is something kids do. Sounds like she was raped but got stuck in that trauma and then repeated it over and over and over again crying out for help. Seeking "attention". You guys are morons. You literally have the BEST psychology department down the street from you and YOU JUST DO NOT RUN PSYCH STORIES BY THEM. I would. If I were a journalist, I wouldn't assume I understood anything better than anyone else except the media. And this piece, with how you basically outed this woman and called her a liar, doesn't even seem to understand the media.

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