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Messed-Up Junk
October 5, 2011
I am an 18-year-old straight male. I have a hodgepodge of birth defects that affect my genitalia: severe hypospadias (my urethra—my piss slit—is at the base of my penis), micropenis (less than two inches), and anorchia (I was born without testes). I have never been naked around anyone else. I don't really like being naked by myself, to be honest.
Lately, my sex drive has skyrocketed. It is driving me up the wall. Couple this with the fact that women see me as attractive, and I'm not doing well. Sexual situations are presenting themselves to me and there's nothing I can do. I've recently started college, and it's endlessly frustrating to see my friends having relationships and being sexually active. I know that casual sex/flings will never be an option for me, but I am dying over here!
Messed-Up Junk
"His story is one that is very familiar to us," says Tiger Howard Devore, vice president of the Hypospadias and Epispadias Association (HEA). "He should know that he is not rare and many with his kind of genital difference have learned how to communicate about their difference to potential intimate partners."
You're right, MUJ: Casual sex/flings—shucking off your clothes and jumping into bed with a girl you've just met—may never be an option for you. But you know what? Drunken college hookups last an hour or two, while the communication skills you're going to have to develop to navigate your sex life will last a lifetime.
And you will have a sex life, MUJ, and there is a lot you can do. There are women out there who prefer tongues, toys, and touch to vaginal penetration. On the Savage Lovecast, I took a call from a woman who was worried she would never find a partner because, although she enjoys other kinds of sex, she's physically incapable of vaginal intercourse; there's a new dating website for straight men and women "who cannot engage in sexual intercourse" (www.2date4love.com); and if you fall in love with a woman who enjoys vaginal intercourse, sex shops sell strap-on dildos to men, too.
In short, MUJ, you have options. You also have role models.
"One of the most validating and reassuring experiences someone with genital difference can have," says Devore, "is to meet with others who share their birth history and have dealt with the same issues of self-acceptance, shame, and isolation, and the challenge of intimate relationships."
HEA hosts an annual conference and it's coming up, MUJ. If you can get your ass to Chicago over the weekend of October 21–23, I strongly encourage you to attend HEA 2011.
"Connecting with others who share his difference is the best way to end his isolation and begin his healing," says Devore. "At the conference, he'll get expert information from doctors and psychologists, and he'll meet men who have grown up just like him and have faced the same fears and overcome them."
HEA offers financial aid to men who otherwise wouldn't be able to attend—an experience that is life changing and, in some cases, life saving—and I've made a donation so more men with hypospadias can attend this year. I'm encouraging my readers to do the same: www.heainfo.org/Donate.html.
I'm a girl from Austria currently seeing a guy who likes to tie me up and gag me. It is just cuffs and ball gags, and I am enjoying it! Recently he sent this text message: "mummification sounds fun." In his case, "sounds fun" means "I wish to try it." I looked it up online. Holy! I was scared after watching this video of a guy wrapping a woman first in cling film and then in duct tape! Face and everything! It seemed like out of a horror movie! I texted him back: "I realize this could be a lot of fun for you, but I don't think I can do that." He's never mentioned it again.
I feel awful for denying him. I tell myself it's about trusting the other person—yes, we have safe words!—but I just can't shake off the feeling of creepiness! Is there anything I can do to get over being terrified? Was it fair to say "Not gonna happen"?
Because I Am Scared
"BIAS should know that it was absolutely okay for her to say 'Not gonna happen,'" says Tynan Fox, kinkster, activist, and blogger (www.tynanfox.com). Fox, just 27, has been into mummification for more than a decade—he's been on both sides of the duct tape—but says he can appreciate why even some bondage fans aren't into it.
"Many people are claustrophobic," says Fox, "and they can't stomach the idea of being wrapped up, and who can blame them? Mummification is extreme play. But her boyfriend is being completely appropriate—she said she wasn't interested, he hasn't mentioned it again—and they should both be commended for their open and honest communication."
But the only way to get over your feelings of terror, if you want to explore this, is to try it while taking things very, very slowly.
"Pace yourselves!" says Fox. "Begin with Saran Wrap only, just from the shoulders to the ankles. If she freaks, the boyfriend cuts her loose and it's over. If the scene goes well, they can add a little more next time. Eventually, she may find the restriction and sensory deprivation provides a heightened sense of sexual awareness and makes her extremely horny."
I moved in with a friend of a friend when I was desperate to find housing in a new city. The guy I live with would be an ideal roommate except he sometimes makes homophobic comments. I never told him I'm gay—I didn't feel the need up front, and now I don't feel comfortable—but homophobia is not the reason I am writing you. The situation goes deeper.
In the midst of my online exploits, I found an Xtube channel for a guy who is most certainly my roommate. He wears a mask in the videos, but the voice and build are the same, same tattoos, and his bedroom is unmistakable. In the videos, he fucks himself silly with massive dildos—MASSIVE—while begging for cock. Part of me wants to pull one of the videos up the next time he makes a comment. Part of me loves the idea of giving this homophobe a good fucking. What would you do?
Roommate's Anal Movies
Your living situation sounds like a setup for a great porn parody, RAM. (When a Stranger Comes: "The ass-stretching amateur porn is coming from inside the apartment!") It also sounds like an opportunity. If you're into this guy—and, having watched his videos (thanks for the link), it looks like you could literally walk right into this guy—why not seize that great, big, gaping opening created by your little discovery?
The next time your roommate makes a homophobic remark, RAM, tell him you're gay, tell him you don't appreciate his comments, and tell him you're somewhat mystified by his remarks in light of his body of work. Then roll the tape.
There's a chance—a slim chance—that he's not gay and just enjoys anal play, sexual transgression, and the attention he gets from men online. But here's hoping you wind up fucking some sense into your roommate and an apology out of him.
Find the Savage Lovecast (my weekly podcast) every Tuesday at thestranger.com/savage.
I was wondering if anyone had the link to this podcast? I'm a woman with a condition called vestibulitis vulvodynia, which means I can't have sex unless I get painful, expensive, and possibly ineffective surgery. It's been freaking me out because I feel like I'll never be able to have a monogamous (or even monogamish) relationship and that whoever I'm with will be perpetually dissatisfied with me. I can't really talk to my friends about it because either A.) they really don't want to hear about my disfunctional vagina or B.) they'll just try to make me feel better("A nice girl like you? You'll find a man who loves you for who you are and won't want to have sex ever!")
I've been interested to hear what Dan has to say about cases like mine--and if there's any hope for people like me. Which it sounds like there is.
Or, you know, keep this as a really fantastic fantasy to wank off to the rest of your life.
Case in point, last week at work...convo on a VHF radio...
Dude: "blah blah, blah blah blah"
Me: "Roger, blah blah blah blah"
Dude: "Roger, thank you darling."
Me: "Do I LOOK like a darling to you?' Over the radio, where everybody on the job site could hear. I'm the only woman on the site, btw.
Dude: "......."
It worked, everybody laughed, afterwards we had a talk about it and I told him politely that being called darling was a hot button of mine, and that was the end of it.
If you call him on it and he quits, problem solved. If you call him on it and he keeps being an uncouth snot rag, move.
I recommend you talk to your doctors about treatment options other than surgery (since you apparently don't want to go that route; neither do I) and get more opinions if you can. I found a pain specialist (anesthesiologist) approached the problem very differently than a gynecologist. Different gynecologists also have different approaches; I have also heard of physical therapists who work with people with vulvodynia.
I wish you well. I know it sucks. But it doesn't mean a happy relationship, including a sex life (even if it's without vaginal penetration), isn't possible for you.
Also, Dan, I know vaginas gross you out, but you should have a specialist on the show, or at least put a call out for one. There are quite a few ladies out there dealing with this and it blows!
@BIAS: Many spas do something called a body wrap, which is very similar to mummification with different materials. You may try it in a non-sexual situation, and see if you get claustrophobic, before trying it with your boyfriend and getting his hopes up in a sexually charged atmosphere.
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BIAS - also good advice there. How awesome that your partner respects your limits. & again, good advice is given. Start small if this intrigues you; don't do anything you're really too freaked out by & have some good kinky fun.
But Dan, I totally disagree with what you said to RAM. His roommate sounds very conflicted, & conflicted guys - even hot, guys who seem like they wanna have cock online - might turn very confrontational if presented with evidence of their hypocrisy while RAM still lives there. I'm not saying don't go for it - I'm just saying, having had some sketchy roommates, that RAM would do better to reveal what he knows, once he's safely living somewhere else. Who knows? They could have a wild fun time. Or, the roomie could flip out & punch RAM, or worse. I'd feel way better about RAM's odds of doing well in this encounter if he didn't share a roof with the Xtube guy when he talked to him about it. RAM, only you know for sure, but this smacks of bad idea to me.
Or, there are lots of guys who'd rather be the penetrate-EE than the penetrator - so if you have a curiosity about pegging, things could work out very well indeed.
I know the stereotype is that PIV is the be-all and end-all...but that's truly just a stereotype. The truth is that there are people with all kinds of preferences. You'll find your match. :)
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Because, I think he should be really careful to avoid making it seem like a threat. If his roommate were to interpret his confrontation as, "Hey, you better stop saying that or I'm going to show this video to EVERYONE," things could turn ugly pretty fast.
But BE THAT AS IT MAY; seriously Dan - if (and I realize that's a big "if" here) IF you ever peek at these comments whipped up by insomniac Sloggers (who really should be working on their thesis right now but screw it) - please consider the possibility that your advice to RAM was considerably off-base. Even if you were drunk, I'm finding it hard to believe that you could toss out that (and only that) advice for RAM's particular question. Were you trying to be satirical and call out a probable troll? If so, you're a genius - but I'm not and he's probably not either, and frankly it's too early in the morning for sorting out riddles of bloody irony. My head's exploding just considering it. Good grief.
RAM carried a heavy troll-vibe for me (can you say literotica, read his letter again) so this probably doesn't even matter. BUT. In the unlikely event that this dude is in earnest, his Xtube-roommate-buddy sounds like a very angry dude, a confused & frustrated (not to mention possibly-closeted) basket case, and a potential tormented lunatic. If nothing else, the Xtube-guy has a decent mean-streak through him; I don't think anyone's going to deny that. This being the case, the likelihood that Xtube would flip right the hell out on RAM if confronted (and, good chance, beat his ass) appears to far outweigh the alternative to my untrained eye. Old Xtube sounds like he could burst a few blood vessels just discovering that someone in his "real" life discovered his secret online escapades, let alone being smugly confronted with embarrassing hypocrisy and getting blatantly hit on by a roommate he didn't even previously realize was gay. A psychologically sounder person would feel a bit unhinged getting smacked with that much lunacy at once. But Xtube? He's like a character written specifically to go bananas in this scenario and lose control on RAM. I really wouldn't risk this one if I were RAM. Homosexuality/homophobia/whatever-this-is are a really REALLY touchy issue to some guys (especially conflicted ones like Xtube), and the two people in question are currently living together - NOT a good time to stir up any strong emotions, really. If it were me, I guess I would come out to Xtube about my own orientation strictly within the context of demanding he stop his offensive jokes. But I wouldn't breathe a word about the Internet findings OR the man-crush yet. Actually not ever, unless the subject somehow came up one day, and didn't seem then like simply bait for me to get my ass kicked. Besides, Dan, aren't you the one who's always saying that guys with c*** fetishes usually AREN'T gay? Particularly the ones who only experience their fetish online, thus still anchored pretty firmly in the fantasy realm? Because from what I've studied, a majority falls into that category. So declaring Xtube gay based on just this detail seems rash. If RAM had seen him in the living room boning another dude, well that would be one thing. But he didn't, and jumping to wild conclusions like you suggested invites some possible serious trouble. I mean, in a big way.
Ah, but the jerk was probably a troll anyway. I've read enough bad Internet erotica to pick out a textbook scenario. Frankly, the only thing missing here is the ballgag. But who knows anymore? Better safe than sorry.
He's made those sorts of warnings before--though it wasn't in reference to mummifying--so I'm guessing it was either an oversight, or he concluded it was implicit to his characterization of mummifying as 'extreme play.'
Here's another VV patient in a very happy relationship. Surgery shouldn't be your only option. In a weird coincidence, my best friend and I both have VV (I think it's way more common than anyone realizes). She got the surgery, I didn't, and we both have happy results (she's married, I may as well be). It can be hard searching around for a doctor who really knows what (s)he is talking about though. I've seen at least six or seven and only really felt like one understood. And don't get too into the online forums about it -- the only people there are the miserable ones who aren't off living their happy lives, so the impression you get is that it's not possible.
Good luck!
Also, the moment you do, he'll probably delete his account and deny everything. Better to move out, come back over to hang, then tell him you're gay and ask him where the homophobic comments are coming from. Engage him in conversation. Slowly, slowly lead to the XTube evidence; don't give it up early.
I'd shut up if you don't know anything about VV. (if you do have a vaginal pain condition, I apologize).
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When a Stranger Comes: "The ass-stretching amateur porn is coming from inside the apartment!"
Thank you Mr. Savage. Once again you have made me laugh out loud.
While you have additional conditions, take heart from this: I had to have an additional, two part corrective survey as an adult to construct a new urethra after I suffered blockages, and part one involved a skin graft and my penis being butterflied like a pork chop. I was extremely fearful initially that my long term partner was not going to want any part of my deformed-for-a-year penis, but found that our relationship easily sustained the issue, including the lengthy period when I couldn't use my penis at all. I guess I'm saying that it's possible to meet the right partner to both give and receive pleasure regardless if any physical issues.
While you have additional conditions, take heart from this: I had to have an additional, two part corrective survey as an adult to construct a new urethra after I suffered blockages, and part one involved a skin graft and my penis being butterflied like a pork chop. I was extremely fearful initially that my long term partner was not going to want any part of my deformed-for-a-year penis, but found that our relationship easily sustained the issue, including the lengthy period when I couldn't use my penis at all. I guess I'm saying that it's possible to meet the right partner to both give and receive pleasure regardless if any physical issues.
Talk with your boyfriend about your kinks. Don't text. You might find out that what he wants is not nearly as extreme as the stuff you've seen online.
I'm probably not typical, but I'm not that unusual, either. There are plenty of guys out there who will accept you as you are.
When I read Dan's advice, I immediately flashed on the possibility of violence occurring.
Anyone that crazily in the closet, may not be all there, as well as feeling threatened by his own desires.
I'd recommend calling him on his bullshit in a public place, preferably a public place with security guards somewhere nearby.
(For instance, our public library has security guards, although in a pretty nice little city, and a cafe in the courtyard. And I've used it for meeting strangers for business, rather than my home office.)
If not for the potential of violence, I'd say Starbucks, but who's going to stop crazy shit roommate if he goes ballistic? A barista?
To the people worried about the roommate being violently homophobic... Possible, for sure. At the same time, the roommate has not yet been uncomfortable enough to want to move out, and in fact seems to not be a big deal to RAM. Now, I'm assuming they are both on the younger side, but I know plenty of gay men who will occasionally make homophobic remarks, particularly older ones. It happens when these types of comments are so prevalent in society, sometimes you grow up with certain views, and being gay yourself doesn't stop you from commenting on people who are, you know, GAY gay.
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I'd worry about the potential for violence in a more direct confrontation. But if I *had* to point out that I knew about his tapes, I think it would be more than enough to mention the "body work" as opposed to actually playing a tape.
I'm not making excuses for the guy, but knowing where his comments fall on the spectrum would shed some light on the situation.
uhh, I have to go be alone now...
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Mummification? Um. No. "Nevah-nevah-nevah!"
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It might not. But I'd still do part A first to see what happens, rather than the whole hog Dan recommended.
Considering the plague of disposable plastic choking our planet, wrapping bodies in Saran wrap for sex play seems like an awfully wasteful thing to do.
Is there an eco-friendly alternative?
Considering the plague of disposable plastic choking our planet, wrapping bodies in Saran wrap for sex play seems like an awfully wasteful thing to do.
Is there an eco-friendly alternative?
Re: BIAS & @46: I don't do this myself, but how about light weight scarves?At least they're washable and colorful.
Hmmm.. yeah. RAM, I'm with @23 & @24: maybe it's best if you're not living with this guy when and if you bring up the anal porn / homophobic comments.
Thanks for another great column, Dan!
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I wonder if there are watered-down versions of this kink that may be less threatening for her but still hold some appeal for her boyfriend. Such as letting him wrap up only her arms and/or legs - individually, or legs bound together, or arms bound to her body. And they should use cloth strips or bandages rather than anything plastic or adhesive that might be unsafe and painful to her.
As she says they've only tried handcuffs so far, I also recommend Japanese rope bondage. It can involve some elaborate wrapping and looping, which may appeal to the boyfriend. Could be a fun way for them to "graduate" from basic handcuff play.
I'm sure the possibilities go on and on.
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Find a woman like me (and we're commoner than you'd think) and a micropenis might turn out to be an advantage!
And this:
"(When a Stranger Comes: "The ass-stretching amateur porn is coming from inside the apartment!")"
Thanks for making my day, Dan :)
You could write a column focusing on only popular sex problems and dilemnas, and not touch anything like this and have a happy career.
I love you because you took the time to advocate for this guy with hypospadias and other problems and gave him resources to help him connect and give him hope...
And the gift you've given me, was the opportunity to remember that compared to SO many people, I DON'T KNOW WHAT A FRICKIN' PROBLEM IS, most of the time....
bless you, (in a pantheistic way)
James "Shoes" Walker
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So, if your fear comes with a hint of curiosity and excitement, learn all you can about this type of play and begin slowly. If it is nothing but a turn off then consider letting him do his own exploring. In either case, just make sure he knows what he's doing.
~Pup Don
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You're awesome. I never miss a podcast. Keep up the good work! ;)
~Pup Don
Re BIAS: As with any other kink, ease into it. And of course you don't cover air passages. I think common sense would tell you that.
Re women with "messed up junk": I prefer oral to vaginal intercourse. Not just a little bit either. I love receiving head from a talented woman and I love giving head all night long. I would be fine with a sexual relationship which was oral-only. I know I'm not the only one.
69
An apparent snuff movie. Extremely disturbing.
I used to really like a guy and we hung out with some friends one day but then i started to loose my feelings for him b/c of the way he acted. I saw a more immature side of him that I don't like. I don't expect him to change b/c that would be too much to ask but I started to not like him as much.
Then on weds during lunch he asked me to go out with him. It wasn't in private and it was in front of a bunch of friends. So I felt pressured and said Yes.
Now Im stuck. I know for sure that i don't like him. Its been so awkward.I was going to tell him this the day after but the day after was his birthday (so i made him cookies).
He thinks that I'm just being awkward b/c I don't know how to be a girlfriend, but I do I just dont want to act like a girlfriend to him to lead him on.
I decided to give it a week but now its too awkward for me b/c he really likes me but i dont like him.
How do i break up with him with out hurting him too much? WHat should I say? I thought that I would say " I think we should just be friends..."
Is that too typical?
For the serious relationship potential you could dribble it out a tiny bit at a time (pun intended). Before she grabs for your cock you might need to explain about the micropenis but all the other medical condition explanations should be able to wait.
It is refreshing in a big way to have somebody with such serious issues (compared to the douchebaggery issues we often get). He is handling it so logically and with such maturity I think he is going to do just fine. Besides, after your married for a few years the girl-cum-wife is going to cut down the sex to almost nothing anyway so he is already ready to get married...
Mummifaction sounds hot- not horny hot, but sweaty hot. I thought it was sweet how the girlfriend feels awful about denying her man. Don't worry, with practice it will get easier and easier until it is more common than not and you don't feel a twinge of guilt. You can even derive sadistic pleasure in denying pleasure to your husband for any real (or imagined) transgressions.
Dan may have dropped the ball on RAM but he might also know more than we do about RAM's situation. Maybe the 'homophobic comments' were pretty innocuous? Anyway, from what was published the roommate sounds like a self hating fag who could get violent if he is directly challenged. I like the seduction route somebody suggested. Send him an anonymous e-mail complimenting him on his "work" and go from their but be careful IMHO.
If he wants to know why, don't get into a negotiation. It sounds like you have difficulty saying things that people don't want to hear, and if you discuss it too long, you'll be at risk of feeling pressured to give it another go, which wouldn't be fair to either of you. Just say firmly and gently, 'I just feel being your friend rather than your girl/boyfriend is what's right for me,' and stick to that.
The thing is, you are going to hurt him at least a bit by finishing with him. If you don't feel what he wants you to feel, there's pain in the future for him somewhere. But that's not your fault, and it's not your responsibility to shield him from it: we all get knocked around looking for love, and we just have to deal with it.
It's nice that you're concerned not to hurt him, but for your own safety, you'd be well advised to get some confidence about turning people down or breaking off with them. Your right not to be with someone you don't want matters more than their right not be disappointed (though you don't have to be a jerk about it). Try reading Gavin de Becker's The Gift of Fear on turning people down: being too 'polite', to the point of being unclear, can actually be dangerous because it attracts guys who have control issues and are looking for people who can be pressured out of a 'no'.
Hurting people for no reason is bad. Hurting somebody a bit because you don't want to be with them is unavoidable, and you need to be able to do it without feeling like a bad person for your own protection. Good luck.
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Just reading about that mummification makes me fucking claustrophobic! Fuck that shit.
Also, something about the last letter feels phony to me. What are the odds of a gay guy stumbling across his seemingly straight room mate's porn videos of him fucking himself with a dildo on some random tube site. Sounds more like a fantasy than someone in need of advice!
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Nonetheless, all the best, Dan, Happy Birthday, and eat lots of cake!!
You may not be able to have casual one-night flings as easily as most, but those are overrated and often regretted during the next hangover anyway. But don't let your genital difference stop you from going out on dates and looking for the right person for you. There are many women out there who will accept you and love you the way you are. I can honestly say that if I had found out my fiance was in the same situation as you are when we started having sex, it would have given me pause only long enough to consider logistics. It wouldn't have stopped me from loving him or wanting to have sex with him.
Lead with your heart instead of your dick, and with time and a little luck you'll find someone who will love and appreciate both, I promise.
I will say that even during the years that I had the pain, I had a very full sex life and learned lots of fun techniques to please my husband without vaginal penetration. Now when we have sex, we still enjoy all of those "alternatives"!
Point being: if women find you attractive, your sex-drive is skyrocketing, and sexual situations keep presenting themselves, you're in clover. You'll want to acquire some technique, and increase your comfort-level with your sexual self. You may prefer to target women who (like college-age me) are bi and/or comfortable with strangeness and/or (unlike collage-age me) have nifty communication skills themselves -- they're less likely to freak out, and more likely to provide useful technical tips & feedback. If you accidentally start messing around with an ill-mannered size/normalcy-queen who makes you feel like crap -- well, feeling like crap afterwards is a common side effect of one-night stands even for us folks with conventional genitalia (which is part of what made Foxy Canadian Boy such a pleasant exception).
@Gwyn:
"Nocturnomath, I have vestibulitis as well, and I am happily married (four years; together seven). It has affected our sex life (of course), but I have found some treatments (estrogen cream topically every day, and lidocaine topically and hydrocodone before sex) that enable us to engage in vaginal intercourse."
I do have something called triamcinolone acetonide cream--is that the estrogen cream you were talking about? Also, how do you use lidocaine without it getting on your husband's penis? How hard is it to get a prescription for hydrocodone for vestibulitis vulvodynia? And how do you prevent inflammation after sex? That's always the worst part for me--the last couple of times I had sex it was so painful I couldn't get out of bed for a few days.
Imagine an 18 year old is a good student, wants to help people, and wants to go to medical school. He studies hard. He goes to college. He has a number of sexual experiences in college. He's responsible and knows about birth control and the regular STDs. He wears a condom. He gets into medical school. He does his internship in internal medicine. He goes to work in a clinic or joins a practice. Picture a relatively small town or even a medium sized city.
In the course of giving babies vaccines, treating sniffles, counseling on weight and blood pressure and diabetes, he gets patients who ask him about sex. One woman has painful intercourse. Another isn't lubricating. A third wonders about her sex drive during peri-menopause. Several have terrible menstrual cramps or pre-menstrual syndrome. A woman is sexually active but doesn't orgasm. A man isn't sure if he has pre-mature ejaculation or not. Another man is worried because he's afraid his fantasies might mean he's gay.
Is there anything in the medical curriculum he might have come across that would help him direct these patients to people who can help? Or does he brush off each of these as psychological? Insurance or lack is another story altogether. Let's say the patient has insurance or is willing to pay out of pocket. Under the best of circumstances, what do doctors know? The questions I'm seeing in this comments section let me know that we don't even know what sort of specialist to ask for.
My gynecologist just prescribed me some lubricant, so I hope it helps.
At least my latest pelvic exam results came back normal, so I won't be making another scheduled appointment for another year. At least I don't have to worry about having my boobs squished. Yet.
Ugh.
That's awful.
I'm assuming you're American?
I thought you guys were getting universal healthcare...
AuntieG-- Have you asked your GYN for a recommendation for a GYN who specializes in peri-menopause? That lubricant, does it contain estrogen? I'm convinced (though see above about how I can throw around advice when I don't know much on the subject) that your problems stem from declining estrogen levels, but your doctor is reticent to prescribe it because of its association with cancer. Estrogen straight to the vagina can be a way (I've heard) to avoid that problem.
Here's more on variation-- Some women complain about mammograms. I'd say they don't have to hurt. The compression is considerably less than you get with an arm band for blood pressure, and it takes even less time. It's just a quick squeeze, more awkward than anything else and not necessarily terribly awkward. But I know some women say they hurt a lot. I don't know what accounts for the difference.
Estrogen and birth control are not effective forms of medication for me, however. Thankfully, my newly prescribed vaginal lubricant is estrogen-free. I have had trouble with producing too much estrogen in the past, with rather unpleasant consequences, so I'm a little skittish about fully buying into the "just take your estrogen, and you'll be fine" diagnosis. Birth control pills are not beneficial for me, either, as my blood pressure skyrocketed dangerously when I was on Ortho-Novum 777 in the U.S. Navy. Despite having to battle my butt off to stop taking birth control, and repeatedly facing bad advice from local quacks where I was stationed: "It's all in [your] head" / "Oh, you just THINK that's a side effect!" ad nauseum, my body weight and blood pressure DID return to normal once I was off the questionable medication.
Additionally, mammograms are NOT what I'd call spending a fun day at the beach! I have a good sized chest, and the procedure hurt like hell! Standing still for what seems like an eternity while someone else has you clamped to a cold machine shooting pictures of your inner veins hasn't done anything for me but put braces on some radiologist's kid's teeth when each annual screening came up negative. So I elected to wait until age 50 for my next mammogram exam. Personally, I'd prefer skipping this procedure altogether. I'm also concerned with radiation exposure accumulated on an annual basis.
99
If the guy I was with had explained it, I would've had a totally different reaction. I really liked him and I would've enjoyed hooking up with him in all sorts of ways.
You'll end up being such a better lover and partner than a lot of guys your age which will win you a higher quality of love in the end.
104
I guess that's why they call it a "practice"---enough times before they finally get it right?
Now to respond to some of nocturnomath's questions. I am somewhat uncomfortable going into so much detail on here, but I can't figure out a way to send nocturnomath a private message. Please let me know if there is a way to do that.
The regimen that I have currently allows me to have sex with minimal pain, but it is not perfect. The estrogen (premarin) applied daily has made a huge difference, because I used to tear every time I had sex (and it got bad enough to tear even from daily activity as well). The estrogen thickened the skin so that I don't tear, which helps tremendously.
The lidocaine and hydrocodone address the other types of pain. The lidocaine does come in contact with my husband's penis, but I think it has less of an effect on him because most of the penis is not mucous membrane like the vagina. It's important to apply plenty of lube, because the lidocaine does make it harder to tell if I am dry.
As far as inflammation, have you tried taking an anti-inflammatory like ibuprofen before intercourse? (Caveat: I am not a doctor.)
Another important factor is how long we have vaginal intercourse. We can't go for a really long time or I'll be really sore afterwards. The inflammation and pain is less if we get close to orgasm before he actually enters me.
The hydrocodone was prescribed by an anesthesiologist at a pain clinic. It is definitely sort of a nuclear option, but without it I was unable to have vaginal intercourse at all.
Like I said, this is obviously not ideal. I have hope that the situation will improve. We are planning to have children at some point, and pregnancy sometimes improves this condition greatly, sometimes permanently. We are also moving soon to an area where there is a large university center focused on pelvic pain treatment, and it looks like they have some approaches I haven't tried.
Finally, I'm very intrigued by what Rojo SD @13 said about birth control pills. I have been on them for more than ten years, and no one has ever suggested that they could play a role in this. I plan on going off of them to see if there is an effect.
Despite the frustrating effects of the VV on our sex life, I want to emphasize to nocturnomath that my relationship with my husband is very strong. Good communication about the problem and willingness to engage in alternative activities goes a long way. Even if the VV isn't treatable, even if sexual intercourse is rare or impossible, it is possible to find a partner with whom you have a satisfying relationship, sexual and otherwise.
Sometimes it takes more than one visit to nail down a chronic ailment. Sometimes doctors get it wrong but often a cause can eventually be found through trial and error using a science-based approach to treatment. Or you could abandon evidence all together and take your chances with a homeopath, faith healer or other fantasy-based practitioner.
The better medical schools DO train students on these topics, sometimes in great detail. Not every doctor goes into a specialty where they develop and maintain this expertise, but they should be able to recognize a problem and refer to the correct specialist. Often OBGYN, Urology, or Psychiatry can often help. Sometimes the problem is due to a general medical condition, in which case an Internist or Family Med probably would be the best doctor to help you.
If you have seen one or two doctors who are clueless, please don't get discouraged. There are others out there who can help. Sometimes it takes awhile to diagnose a problem, because it may not be explained clearly by test results, which are often used to rule-out emergencies or common problems. Not every disease has an absolute cure, and some 'cures' are worse than the disease, but almost all suffering can be alleviated.
You can help your doctor by preparing a detailed list of your concerns and their timeline, what makes your symptoms better or worse, any other medical problems you have, what medications and other substances you use, etc. You can also prepare a list of questions for your doctor, so that you don't forget to ask anything important during the brief visit. State your biggest concern at the beginning of the visit, because this is often what the doctor will pay the most attention. Try to paint your problem in terms of function (what you can or can't do) rather than repeatedly emphasizing severity of pain (which is of course also important).
Hope this helps! Good luck to y'all!
Unfortunately, the only pelvic pain specialist in my region is an evangelical doctor. His practice is covered with religious materials (including on the ceiling above the exam table & stirrups) and pamphlets advising that Jesus Christ is the only way to heaven and all other religions are false. He is part of a group that aims to use the practice of medicine to evangelize. I think that this is an abuse of power, especially when you are the only doctor in a certain specialty available to people. Plus, women need to be comfortable telling their gynecologist their sexual history, even if it includes extramarital sex, abortions, homosexual acts, prostitution, or similar non-Christianity-friendly issues. End rant.
In general, though, I don't have a negative view of doctors (actually, I am married to one). I think there is variation, as in any profession.
Yes, physicians are humans and prone to error like the rest of us, too, but they don't have to make the pharmacists rich.
http://www.cmda.org
They specifically discuss the importance of sharing faith with patients, although they try to maintain some semblance of ethics by including a lot of caveats.
http://www.cmda.org/WCM/CMDA/Issues2/Hea…
I found the whole thing appalling.
I also don't have a problem with them having their faith as long as they don't try to force my decisions to fit their morality. That's not to say that many doctors don't try to do exactly that. It sounds like the experience you had was one of those. And, as you said, being the only doctor of that type does make things more difficult as well.
As an example, my PCP has a few religious pictures/saying in his office. Occasionally when talking to him, if you know what you're looking for, you can pick up hints of his faith. However, he has never pushed his faith on me (and he's been my doctor since I was a born)or made me feel uncomfortable about asking any question.
It's a tough line to walk. I don't think anyone should push their religion on others, but I also don't think that anyone should be kept from expressing their religion to the extent they see fit(barring violence in the name of religion of course), even in a work setting.
I don't know anything at all about your condition, but I know that there are some techniques that are used to help soften and loosen the perineal and vaginal tissues before giving birth, such as massage and using mineral oils, to allow for greater stretching. I don't know if they would help at all with your problem ('cause like I said, I'm completely unfamiliar with it) but if you haven't talked with your doctor about things like that, it might be worth looking into.
The poster on the ceiling over the exam table was the final creepy touch. I really don't like staring at a poster about God and Jesus while getting a gynecological exam!
I think we agree that this is definitely taking the displays of faith too far. Even all of that wouldn't bother me so much if it was just one of many clinics in the area, and people could self-select to go there if they share his views.
Likely, the major factors are size, density, and sensitivity. I have trouble doing self-exams (and, in fact, generally don't bother) because, every time, I come to the exact same conclusion--they're large, they're lumpy, and it kind of hurts to poke at them.
I'll take a blood pressure cuff any day. I've got my own, kindly provided by the VA, and check my BP regularly.
Angel
If your roommates comments offend you, I'd tell him that they offend you. If it were myself, I'd also mention that they offend me partly because I am gay.
I really don't see a good reason to bring up his dildo-movies with him _in regards to this issue_. If you're good enough friends with him to mention you've run across them without fearing he'll go apeshit, you ought to be good enough friends with him to mention that you don't like his homophobic comments, or that you yourself are gay. I'm guessing this isn't the case.
The last thing I'd do with a person I'm stuck living with, who isn't aware I'm gay and makes bigoted comments, is try to get into bed with him, as has been suggested, above. That sounds like a recipe for disaster.
The treatment included topical creams, long warm baths (really!), practising with a dildo of varying widths, physiotherapy of the vaginal muscles (Kegel exercises. If you don't have VV you discover them during pregnancy), and lots of intimacy and understanding with your partner. I found one who was willing to wait for a hundred years if need be; so will you. Good luck!
I don't think that hormonal bc causes all or even most cases of vv, but I think it's worth looking into before trying more drastic measures like surgery. I know that doctors can't necessarily recommend things that don't have much research to back them up, but I'm glad that I read about the possible bc link on here and wish I'd heard this five or six years ago.
Even if you aren't based in NYC and can't see this guy in person, he offers appointments by phone and by Skype. Appointments ($250) and biofeedback device purchase ($350) aren't cheap, and not all insurance plans cover his care, but as a current patient, I can attest that his service is worth every penny. I'm 23 and have had severe vaginismus, vulvodynia and vestibulitis. After trying topical creams, low-dose antidepressants prescribed as pain medication, dildo insertions, psychotherapy, and pelvic muscle physical therapy, only Dr. Glazer's method has enabled significant attenuation of all of my symptoms.
Dan, let's start a fund for Nocturnomath's care! To anyone else, I've spent a lot of time looking for care and working on treatment, so please contact me if you have a question I might be able to answer.
And @MUJ, from those of us who don't rely on vaginal intercourse for our primary or preferred route to satisfaction, give one of us a call :P.




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